Friday, July 24, 2009

My Very Own CGM!

This is the most unflattering picture of me and with my black shirt it may be difficult to see. Nevertheless this is my right arm. I am wearing my very own CGM (continuous glucose monitor) in my arm! I am pretty excited about that because I didn't like having the trial CGM's in my stomach. The first trial was fine but the second trial was irritating the whole time. So I really wanted to try to wear the CGM somewhere other than my stomach. I hardly notice it at all.

The nurse educator was very nice. I was glad she left me a big packet explaining everything she verbally explained. Sometimes I thought I understood and I would think back to the trials I did and have an ah-ha moment. But really, I am so overwhelmed with new information! Hubby was there most of the time. He had to chase Little Miss around some of the time. He says he understands so I think we can figure this all out. It just felt like she explained all these things that could go wrong and with my gloom and doom outlook I am convinced something will go wrong and I don't think I understood how to fix it. Everything went wrong with my last trial but it didn't matter because I went to the Dr.'s office and had it removed and I walked away. No big deal. Now the CGM is mine and I guess I need to know what I'm doing. It will be fine. The benefits outweigh the inconveniences.

One thing I wanted to talk to her about was the fact that my transparent dressing is crappy. I got this new box several weeks ago and the dressing falls off completely in the shower. It's like all I had on was a piece of Saran Wrap. The tape underneath comes off too. Actually, it kind of disintegrates. It's weird and really annoying. Well, Lisa was talking about the dressing and she said that I could wear different dressings that I can buy from Wal-Mart or Target. I guess Mini Med will let me buy dressing for my pump but the exact same dressing for my CGM is more expensive! Sounds like something a medical supply company would do. Then she said something about how the dressing was originally designed to be put on the skin and have the pump infusion set go through it. It's for people who are sensitive to the adhesive. That's me! So when I change my infusion set later today I think I may try that.

I think I understand some of the settings better. She changed a couple of settings from what I had with my trial. Like the low BG alarm. It was set to 55 before. We changed that to 75. That makes more sense to catch a low before it gets super low.

She told me that it takes a couple of times changing it (or telling the pump I've changed it) to really get into a groove and feel comfortable with it. She also said that she picks one day a week to always change hers. She changes it every Sunday morning. So I will change mine on Sunday because that will be the two days the FDA wants me to change it. Then after that I can plan on changing it weekly. It takes some time to change it because I have to wait 30 minutes before hooking up the transmitter and then I have to calibrate it 3 hours later. So it's nice to plan on one day a week to do all that and know that's how that day will go. It sounds like I should only have to test 3 times a day. I can do that! This should be interesting.

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Now that I've shared my thoughts, what are your thoughts?